Neuroblastoma Childhood Cancer please read.

[Guest nachomuncher]

:kane Hi everyone just wanted to say some of you may be aware that my daughter Briony 3yrs old was mentioned in a discussion a while back i think it was one entitled the worst thing you heard today or something like that. I have to confess i dont use this site much these days cause im way too busy so i hope this wont sound cheeky.(here goes)

 

Briony lost her fight aged just 3years 3months and 3 days on the 19th march this year she thought a disease that only affects around 100 children in the U.K. each year so its vry rare the survival rate is very low. If a child is cleared of the disease it can still come back within 5 years and sadly there is no cure once it returns then it can be treated but not cured.

 

Im asking for anyone who can help please go to http://www.nsoc.co.uk and when i say help i dont mean putting there hands in there pockets i want more and more people to be aware of this disease I live in barnsley South Yorkshire and my daughter was treated first at leeds general infirmary then moved to jimmy`s before we moved to Sheffield Childrens Hospital and in the last two years me and my wife have known (not including Briony) 4 cases of this horrid disease and two have now passed on one thankfully was caught really early and is cleared but still needs regular checkups scans and x-rays and the other child is in junior years around six or seven and its come back and like i said before it can be treated but as yet not cured. So please all i am asking if possible please visit http://www.nsoc.co.uk for more info on the disease and lets all try and raise more awareness for a disease thats so rare its almost forgotten about. :kane

[Paul 584]

VERY sorry to hear that man. I can only offer my condolances and best wishes to you and your family.

I know its no help, but you can at least know you had some of the best childrens doctors in the UK.

[Guest FreeSpirit]

I am extremely sorry to hear you lost your daughter through this terrible disease. nachomuncher, it must have been an extremely traumatic experience for you and your family, and my thoughts are with you.

 

I will be gladly read through the website in the hope it makes me more aware of neuroblastoma.

[Guest Nemesis Enforcer]

Very sorry to here this Nachomuncher, my best wishes go out to you and your family and I hope that this thread raises awareness of the plight of children and their families suffering from this terrible disease

[Ryan 188]

My friend Tom died from Neuroblastoma in 2003, had the disease since he was little.

[DC 536]

Sorry to hear that Bub.

[Guest Miss T]

Very sad story, will check out the website now.

[Guest Steve O]

Wow that is awful Ireally feel for you buddy!

[Guest ahsatan]

Sincere condolences to you and your family.

[Guest nachomuncher]

:kane From myself and my wife and two sons thanks so far to all of you who have sent there regards/condolences and well wishes and to all those who read this in the future thanks. :kane

[Guest nachomuncher]

My friend Tom died from Neuroblastoma in 2003, had the disease since he was little.

:kaneMy friend im sorry to hear that you out of most people must know now the pain and hurt this disease does to familys im certainly not a religious man but nor do i make fun or snub anyone who is but i do believe no one really leaves us. take care dude. :kane

[Guest Inno]

Can't even begin to understand how you're feeling now, as a father myself.

 

Sorry doesn't cut it, but I am sorry to hear that :(

[Guest Gemsi]

So sad to hear. My thoughts are with you and your family.

[King 277]

So sorry to hear that Nachomuncher.

 

My thoughts are with you.

[Guest MojoPogo]

Sincerest sympathies to you and yours mate, i cant pretend that i understand what you must be feeling, but i can empathise. We're here for you if you need us.

[Nimf 324]

I can't even begin to imagine the pain you and your family have gone through and are still going through. Sending much love to you all.

 

I have heard a bit about this type of cancer but I will encourage others to have a look at the site.

[Guest Kanenite]

I'm really sorry for your loss. People have already said but it really is unimaginable to experience what you must be feeling. My thoughts are with you and your family.

[Kam 243]

Thats terrible news, my sympathies to you and your family. I cant say I’ve heard of this form of cancer, but thanks for making us aware of it.

[Guest nachomuncher]

:kane To all of you out there who sent thoughts to me and my family i thank you all so much and hope that some day there will be a cure for this disease thats taking the lives of innoccent little children some may notice my new avater just thought folks would like to see my precious little angel. Always smiling. Again thanks to you all for your kind words and keeping me strong/sane. :kane

[Guest Al Stevens]

I am so sorry to hear of the tragic lose you and your family have suffered Nachomuncher (I would have replied alot sooner, however there some family problems going on right now). I just want to extend something in a way of words to try and help heal the pain you and your family is going through this rough time of your life.